About the Book
What Time is the 9:20 Bus?
By Lucinda Hage
This is an intimate look at raising a child with an intellectual disability from childhood through adolescence to adulthood. Lucinda Hage covers a 28 year journey culminating in her son Paul achieving a life of meaning in his community. It’s a compelling read that provides hope, ideas, and an example of what is possible when individuals with disabilities are given a chance to achieve their potential.
With exceptional resilience, tenacity, faith and very hard work, the author makes a successful life not just for herself, but also for her son. Summer camp changes Paul’s life; as a single parent, she finds a new partner and love. The reader cheers for Paul as he struggles to take his rightful place in society, and for his mother as she works ceaselessly to make that possible. It is nothing less than miraculous that Paul is living in his own apartment, with a job.
With painful honesty, the reader follows the journey of a mother who has fought so hard for her son that when the time comes to let him go, that struggle is as hard as any other.
Lucinda shares her extensive reading and her thoughtful insights into the systems and forces that keep those who are different apart and down. In addition, she includes an extensive resource section, information on Circles of Support, strategies for creating a good life, and what it means to belong.
While this book will appeal strongly to parents of children with developmental disabilities and autism, it is also for family members, neighbours, friends, caregivers, social service workers, doctors, therapists, nurses, educators, and students; anyone who cares about creating communities where every person is seen as valuable.
What Time is the 9:20 Bus? is the first book of its kind in Canada, and it’s long overdue.
Parents whose children live with a disability are understandably worried about their son or daughter’s future. According to researchers from the School of Public Policy at the University of Calgary, “the gaps in public supports and services are particularly glaring for adolescents who leave the school system -- and the care and daily structure that go with it.”
In 2006 there were 174, 810 individuals between the ages of 5-14 years living with a disability in Canada. These young people are now facing, or have faced, the difficult transition from high school to an unknown future. Paul’s journey to independence, which began when he was a child, gives the reader hope, ideas, and an example of what is possible when people with disabilites are given a chance and the support they require.
Forward by Dr. Daune MacGregor, MD
Professor of Pediatrics (Neurology), University of Toronto
Staff Neurologist, Sick Kids – The Hospital for Sick Children
"This is a brilliant book with a message that must be heard."
Eva Marsh, author of Black Patent Shoes, Dancing with MS